Thursday, November 28, 2013

The Baby Who Almost Wasn't May Just Skip the NICU

All right, so I may be getting ahead myself, but we just got amazing news yesterday, and it gave me a lot of hope.


Your bright bowel has cleared. Yay!!!  Two weeks ago, you were in the 12th percentile for weight, weighing only 1.1 pounds. Yesterday you jumped to the 21st percentile and gained a half-pound in two weeks!! The amniotic fluid that was surrounding you was only at an 8 two weeks ago - the normal range being 8-24.  Yesterday I was at 16!! And the doctor couldn't get a good look at your foot, but the tech and I didn't see any sign of rocker bottom foot. 

So all this news just brought even better news.  If you keep thriving like this, we may be able to push past 34 weeks and you may avoid the NICU altogether.  I swear, you are taking all the bad news and just laughing in the face of doom, and saying, "Oh Yeah???  Think so?  I don't.  I think I'm going to turn things around and show you how awesome I am." 

I like it. Keep it coming.

Doc says we're not out of the woods yet, but that we can relax at 30 weeks - just three weeks away!!!  I know we can do this.  I am so excited. I love you so much!!!!!


***
After reading my most recent post about you, I realized I haven't posted all the other super-awesome-fantastic news we've been receiving!  First chromosome test results: CLEAR!!  Virus results: CLEAR!!  Micro array chromosome test results: CLEAR!!!! And no signs of neural tube defects or anything else resulting from high AFP levels.  Tippity tap, tap!

I don't know if we'll do it, but Daddy and I are seriously considering giving you the middle name "Danger." I was growing leery of it, worried about it hurting your chances of becoming a senator later. But as I type this, I think you may have earned it.  And it will make you a wicked cool Navy Seal.

Saturday, November 9, 2013

Fin Quirks and Maddie's First Creepy

Today, Fin heard Maddie say something about a Halloween party (she was looking at a Minecraft video on her iPad). Fin put his little fists up under his chin and said, "Ha'ween pahty, peeese, Mommy? Peese?" He was so stinking cute that I wanted to give hom one, but alas, not possible.

Earlier today I asked Fin a question.  He tucked one fist under his chin and said, "Hmmm, let's see..."

Yesterday I put him down for a nap. After reading and singing to him,  he said (as always), "Mommy stay! I wan Mommy stay!" I told him I needed to go because I needed a tissue for my nose and needed to take my own nap.

When I went to get him after the nap, the first thing he said was,  "Mommy get tissue?"

"Yes."

"Oh, good. Mommy take nap?"

"Yes, I did."

"Oh, great! "

Fin has also been enjoying playing with my stethoscope.  He listened to my heart and said, "Sounds good. Sounds good."

This morning at breakfast, Maddie said, "I think this is my first time eating a creepy." To which I replied,  "It's 'crepe.'"

I love these guys!!

Friday, November 8, 2013

A Doctor, a Historian, and a Fighter

The other day, Fin told Sissy to lay down on the couch  He put a towel on her tummy, held up a clip board, and said, "Here Sissy. Picture. Picture!"  I'm pretty sure he gave her an ultrasound.  Two days ago, a stethoscope arrived so I could one day listen to the littlest Fleischman.  It has become Fin's favorite toy.  He spent several minutes listening to several parts of Sissy - her knee, her back, her arm.  Today, I showed him how to listen to my heart, which he loved.  The best part was when he smiled and told me reassuringly, "Okay, sounds good! Sounds good!"  Right now, he's wandering around with the stethoscope, a broken toy blood pressure cuff, and a toy syringe, happy as can be.  Dr. Fleischman has an excellent ring to it.



Sissy isn't doing too badly.  She had developed a craze for history.  She is becoming more like Matt every day.  He has a tendency to get an interest and then pursue it to a level of obsession.  It's been fun to watch her become interested in historic events and people.  She has decided to become a history professor.  Considering she also has an obsession in Minecraft and professional gamers, I'm glad to hear she's leaning toward a professorship.

As for the fighter...  Last Wednesday we got a plethora of potentially bad news for our littlest Fleischman.  The doctor says he is measuring small and may stop growing altogether, he may have contracted a virus and/or have a genetic disorder,  he probably has at least one knot in his umbilical cord and is not receiving enough oxygen and nutrients, he may have rocker bottom foot, that my amniotic fluid is low, and that my uterus is tearing away from its lining.  She made it clear that I could go into labor any day and things were possibly dire.  She said to make sure I feel the baby move every day. Well, at 23 weeks I was still having trouble feeling strong movement and never felt him when I was lying down - only when I'd been up and about for quite a while.  Because of all the complications, the doctor put me on bed rest.  Three days after being on bed rest, I had gone the whole day without feeling anything.  By midnight, I panicked and headed off to Labor & Delivery to verify a heartbeat.  While talking on the phone to the on call doctor, I was told that if the baby showed signs of distress, they would make no effort to save him because, at 23 weeks gestational age, the likelihood of survival was just too slim.  In short, they would wait for him to die and then remove him. You can imagine my relief at hearing that heartbeat and the reassurance from the nurse that he was quite active in there, even if I couldn't feel him. 

Yesterday I made it to my first gestational milestone: 24 weeks. He's now has a 50% chance of survival if delivered early, and goes up to 60%+ next Wednesday.   28 weeks is the next big milestone, as then his lungs will be much stronger and will be developed enough for breathing with minimal help.   Yesterday we also got the good news that I tested negative for Cystic Fibrosis.  In order for little man to have it, Daddy *and* I would have to be carriers.  1 in 31 Americans is said to be a non-symptomatic carrier.  That was a big relief, even if it doesn't rule it out completely. 

At that last ultrasound, they did an amniocentesis and took three vials: 1 to test chromosomes 1-22 +6 for genetic disorders, 1 to test for viruses, and 1 to look more closely at each chromosome if the first test comes back negative.  The genetic tests won't be back for another two weeks, but I'm hoping the virus results will be ready when I see the perinatal specialist on Wednesday. In the meantime, I'm dutifully lying down and doing my best to exceed my minimum ounces of water intake each day. 

Fin is watching way too much TV while Mommy can't play or take him anywhere, but he is being such a rock star.

I have three great kids. 

Sunday, November 3, 2013

This happened today ....

It's possible Fin has been to too many doctors' appointments with me. He and Sissy are playing. He just ordered her to lie down, placed a towel over her tummy, and then he held up a clipboard. "Here, Sissy. Picture. Picture. "

I think Sissy just had an ultrasound.